Congenital heart diseases

Congenital heart diseases (CHD) are structural abnormalities of the heart or major arteries that occur during the fetal development. The CHD are the most common birth defect (8/10 live births) and their treatment occurs in 60% of cases in the first year of life, in 30% of cases in patients older than 1 years and in 10% of cases in adulthood. The spectrum of CHD is wide and, generally, CHD are classified in simplex, moderate and complex defects, therefore, there are several clinical conditions. This WG aims to develop collaborative projects that develop customized clinical programs able to improve the patient quality of life and reduce the incidence of adverse events. Specifically, the WG aims to:

  1. Establish structured registries with an active patient participation able to improve studies on early pre-clinic valuation of heart failure in patients with complex CHD (Metabolomic studies);
  2. Develop educational programs of webinar and virtual laboratory simulation, fostering dissemination of bioengineering applications (computational simulation, Artificial Intelligence, holograms and 3D reconstruction) and of advanced imaging (4D Flow CMR) for the diagnostic and therapeutic planning phase;
  3. Develop patient engagement models using the Digital Health instruments and teleconsultation in order to guarantee a personalized therapeutic approach and a direct feedback about the clinical outcomes.

Coordinator:

Dott. Alessandro Giamberti

Partecipants:

MULTIMEDICA Giuseppe Ambrosio – AUXOLOGICO Lia Crotti – FONDAZIONE CA’ GRANDA Anna Colli – OSPEDALE SAN RAFFAELE Alessandro Giamberti – OSPEDALE PEDIATRICO BAMBINO GESÚ Giulio Calcagni – POLICLINICO SAN MATTEO Eloisa Arbustini – ISMETT IRCCS Eluisa La Franca – IRCCS AZIENDA OSPEDALIERA UNIVERSITARIA SAN MARTINO Francesco Santini – ISTITUTO GIANNINA GASLINI Gianluca Trocchio – IRCCS POLICLINICO UNIVERSITARIO AGOSTINO GEMELLI Francesca Graziani